It's been 10 weeks since we went in for our 20 week ultrasound. Excited to find out the sex of our third baby, we weren't prepared to hear the news that our baby had CDH. Without ever hearing this acronym used in either of our previous ultrasounds, we had no idea of what it was, or how serious it is. Good news is, you're having a girl; unfortunately she has a birth defect...Congenital Diaphragmatic Hernia...(what is CDH? click here)
To say that this last 10 weeks has been a roller coaster would be an understatement. It would be better described as a STORM. A big one; like images you'd see from space; covering the whole state you live in. The reoccurring theme of "a storm" through music and topic during this time lead to the name Noah (and the Flood) or (since we're having a girl) Noa. Noa is derived from a word meaning "movement", fitting name since she has been the most active of our three. Noa is also claimed as a Japanese name, loosely translated as "my love" and an Arabic name meaning "light". We gain Hope and Faith after each doctors visit finding that her condition hasn't worsened since we found out and that the outcome looks better and better.
Every three to four weeks we've had meetings with one or more of our DR's; our OB-Gyn, MFM (Maternal Fetal Medicine- specializing in high risk pregnancies), a Pediatric Surgeon, and a Neonatologist. We were assigned a case worker (social worker with a medical background) to assist in bringing all these DR's together for our birth plan. We have a Build-A-Bear with Noa's heart beat and a collection of ultrasound pictures that can fill a photo album. We can truly say that everyone who has been a part of this journey of ours has been amazingly kind and loving. We've felt we're in good hands and supported every step of the way. Being in Spokane and in the care of Sacred Heart Hospital and their DR's is reassuring to us.
Our next appointment is August 24th with our OB and than Sept 14th with MFM...
more to come......
more to come......
No comments:
Post a Comment